Mark your calendar MTM-CNM Family Conference July 24-26, Houston (281) 997-3581 www.mtm-cnm.com Families affected by myotubular myopathy (MTM) and other centronuclear myopathies (CNM) will gather for fellowship and information on current research and treatments, with presentations by top researchers in this area.

 

2009 Independence Expo Aug. 7-8, Orlando (800) 404-2898 www.independenceexpo.org Sponsored by the United Spinal Association, the expo will feature products, services, resources and workshops geared toward people with disabilities.

Nemaline Myopathy Conference Aug. 8-9, White Plains, N. Y. www.nemaline.org People affected by nemaline myopathy, families, friends, caregivers, doctors, researchers and health care specialists will gather to share information and support.

2009 National Disability Sports
Conference
Sept. 10-12, Kennesaw, Ga.
www.blazesports.org

 

U.S. Business Leadership Network Conference & Career Fair Sept. 15-18, Landover, Md. (305) 519-4256 www.newworkforceconference.org The conference, which features a national career fair, provides networking, education and resources related to employing people with disabilities and marketing to customers with disabilities.

2009 National Respite Conference
Sept. 24-25, Los Angeles
(919) 490-5577
www.archrespite.org
The conference is for caregivers and
families.

2009 11th Annual Periodic Paralysis
Association Conference
Oct. 9-11, Orlando, Fla.
(407) 339-9499
www.periodicparalysis.org
Contact: lfeld@cfl.rr.com (Linda Feld)
Experts in periodic paralysis, including
physician-investigator and MDA grantee
Stephen Cannon, will speak.

Closing the Gap Conference on Assistive
Technology

Oct. 15-17, Minneapolis (507) 248-3294 www.closingthegap.com The conference features product exhibits and more than 200 workshops.

Resources

Accessible public
transportation

(For more on accessible public transportation, see “Rolling Through Phoenix and Boston” page 23.)

ADA Accessibility Guidelines for
Transportation Vehicles
www.access-board.gov/transit/index.htm

Disability Rights Education and Defense Fund (510) 644-2555 www.dredf.org/transportation DREDF advocates for strong, comprehensive ADA transportation requirements and services, and provides in-depth training on ADA transportation.

DOT Guidance Clarifies Paratransit
Regulations
(888) 446-4511
www.uic.edu/orgs/ada-greatlakes/
adanews/ 003dotguidance.htm

Federal Transit Administration Office of
Civil Rights

(888) 446-4511 www.fta.dot.gov/civilrights/civil_ rights_2360.html FTA.ADAAssistance@dot.gov The Web site has complaint forms and technical information on the transportation provisions in the ADA.

2008 Public Transportation Factbook,
American Public Transportation
Association
www.apta.com/research/stats

Accessible vehicles

(See “Accessible Vehicles Q&A,” page 27.)

Quest Articles

To read the articles below, go to www. mda.org/QuestMagazineOnline, and click on “Quest Back Issues.” If you’re not online, contact your local MDA office at (800) 572-1717, and ask that a copy be mailed to you.

“Hand Controls Keep You on the Go,”

July-August 2008

“InfoQuest: Hand Controls, Turning Seats & Funding Resources,” July-August 2008

“Turning Seats Can Enhance Mobility,”

July-August 2008

“Playing the Money Game: Funding Challenges and Options,” May-June 2008