Between issues of Quest, readers can stay informed of the latest research news through Quest Extra stories on the MDA Web site ( www.mda.org/ QuestMagazineOnline).
For those who missed them, below is a list of Quest Extra online stories (as of May 29) that were not included in this issue of Quest. If you would like to read any of these articles and don’t have Internet access, call your local MDA office at (800) 572-1717 and ask that a printout be mailed to you.
Idebenone Not Effective Idebenone failed to show a significant difference when compared to a placebo in Friedreich’s ataxia
Blocking a protein associated with inflammation and scarring helped mice with a DMD- like disease.
A new study shows a small change in the KIFAP3 gene lengthens ALS survival time.
Possible ALS “biomarkers” are discussed at American Academy of Neurology meeting.
When ALS-affected nerve cells lose function, their closest neighbors can’t protect them.
Longtime disabilities advocate will serve on the Maryland State Independent Living Council (VIDEO).
April 2009
Master Woodworker
Dale Taylor brings wood to life.
The widely used test may not screen reliably for heart problems in DMD.
Ms. Wheelchair Indiana, who has SMA, is a veritable Superwoman. (VIDEO)
A Streak on the Slopes A former expert skier with FSHD now schusses the slopes on a bi-ski (VIDEO).
Modafinil (aka Provigil) may reduce common fatigue and daytime sleepiness in ALS.
Now there’s another option when considering a bathroom remodel
ShowerBuddy SB1 — A rolling shower chair that will roll around the house like a wheelchair and will dock to the shower base and slide in. Once inside you can disconnect the rolling part so you can close the shower door. The unit will swivel 360 degrees if the space allows. Also rolls over the toilet with an optional toilet docking mechanism.
TubBuddy SB2 — A rolling shower chair that will move around the house like a wheelchair and roll over the toilet. Connect the bridge and slide over the tub.
TubBuddy with Tilt SB2T — A rolling shower chair with tilt that will move around the house like a wheelchair and roll over the toilet. Connect the bridge and slide over the tub.
Buy today, shower tonight!
www.myshowerbuddy.com (877) 769-2833
References:
http://www.mda.org/disease/fa.html
http://www.mda.org/disease/dmd.html
http://www.mda.org/disease/dmd.html
http://www.als-mda.org/disease/als.html
http://www.als-mda.org/disease/als.html
http://www.als-mda.org/disease/als.html
http://www.als-mda.org/disease/als.html
http://www.mda.org/publications/fa-sma.html
http://www.mda.org/disease/fshd.html
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